Monitoring

Comprehensive cognitive and behavioural evaluations should be carried out every 6 to 12 months to track progression of the disease and to identify unmet needs. Carer burden/stress can be marked and should be assessed by independent review at each visit.[140] Enquiry regarding the coping and well-being of any dependent children is also recommended.

Fitness to drive is impaired in patients with FTD, sometimes even at early stages of the disease, due to early behavioural symptoms such as disinhibition, impulsivity, antisocial behaviour, and increased risk tolerance.[141] However, patients are often in denial about their driving ability and refuse to give up. Driving status should be reassessed at least every 6 months. The American Academy of Neurology and the UK Royal College of Psychiatrists have published guidelines for assessment of driving risk in dementia.[142][143] Clinicians remain subject to local reporting requirements and associated liability when diagnosing any driver with dementia.

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