Patient discussions
The parent (or caregiver) should notify a physician immediately for any symptoms that could be consistent with an episode of enterocolitis. Long-term follow-up with physicians familiar with bowel management in Hirschsprung disease is recommended to maximize the quality of life. Normal bowel function may be achieved with dietary modifications, laxatives, and/or enemas.
There are useful resources and support groups available for patients and caregivers.
Use of this content is subject to our disclaimer