Patient discussions
Advise patients to contact their physician straight away with any worsening symptoms of weakness, numbness, paraesthesia, facial weakness, difficulty with swallowing or breathing, or worsening bladder function.
Advise patients to continue with physiotherapy and occupational therapy.
Provide information about possible long-term effects of Guillain-Barre syndrome (GBS), such as fatigue, pain, and psychological problems, and encourage the patient to contact their physician if they experience any of these problems.
The Erasmus GBS Respiratory Insufficiency Score (EGRIS) score, the Erasmus GBS Outcome Score (EGOS), or the modified EGOS (mEGOS) may be useful for counselling patients or their family on prognosis, but it is important to emphasise that they provide estimates only and there is considerable uncertainty.[132][133][163] The EGRIS score is recommended for predicting the need for mechanical ventilation within 14 days of disease onset in the acute phase, and the EGOS or mEGOS score for predicting the likelihood of independent ambulation at 3 months or later in the recovery phase.[132]
Provide information about patient organisations, such as GBS/CIDP Foundation International (the international patient association for GBS). CBS/CIPD Foundation: International patient association for GBS Opens in new window
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